Clinical Trial: WREX Outcome Study
Study Status: Completed
Recruit Status: Unknown status
Study Type: Interventional
Official Title: WREX Outcome Study
Brief Summary: This study is to evaluate how the Wilmington Robotic Exoskeleton (WREX) is working for children who are using the WREX, or have used it in the past. The survey consists of a set of questions a) performed online and b) performed over the phone.
Detailed Summary: The WREX (Wilmington Robotic EXoskeleton) is being used by many children with neuromuscular conditions such as arthrogryposis and muscular dystrophy. Nemours/A.I. duPont Hospital for Children alone has provided a WREX for about 80 children in the last 3 years. This is being done through the orthopedic and muscle clinics in the hospital. We would like to perform a retrospective study to see how well the children are doing with the WREX. We propose getting this feedback through a survey administered to families using the WREX. The survey will be performed in two parts. 1) A phone survey will use the Canadian Occupational Performance Measure (COPM). 2) an online survey with additional questions. The parents are asked to submit answers on behalf of the children if they are unable to.
Sponsor: Nemours Children's Clinic
Current Primary Outcome: Activities of daily living [ Time Frame: 6 months ]
Original Primary Outcome: Same as current
Current Secondary Outcome:
Original Secondary Outcome:
Information By: Nemours Children's Clinic
Dates:
Date Received: August 13, 2014
Date Started: July 2014
Date Completion: July 2015
Last Updated: August 14, 2014
Last Verified: August 2014