Clinical Trial: Xeroderma Pigmentosum Patient Experiences

Study Status: Recruiting
Recruit Status: Unknown status
Study Type: Observational

Official Title: Xeroderma Pigmentosum: A Survey of Patient Experiences

Brief Summary: Xeroderma Pigmentosum (XP) is a rare skin condition that causes extreme sensitivity to the sun and an increased incidence of skin cancers. The purpose of this study is to find out more about XP patient experiences and their quality of life.

Detailed Summary:
Sponsor: Henry Ford Health System

Current Primary Outcome:

Original Primary Outcome:

Current Secondary Outcome:

Original Secondary Outcome:

Information By: Henry Ford Health System

Dates:
Date Received: May 12, 2010
Date Started: July 2009
Date Completion: July 2010
Last Updated: May 12, 2010
Last Verified: May 2010